With the hope of a treatment families have turned to private companies and are spending $8,000 a month for the treatment. “We’re going month-to-month, everyone’s digging in. It’s completely unsustainable,” says White. Even though the price is unsustainable, White has noted remarkable improvement in her daughters condition and will do whatever she needs to to keep her daughter on the treatment. Since Orkambi is not patented, another company in Argentina has began producing a similar drug for only $23,000, a significant reduction in price that may make the drug accessible to more families.
I believe that this advancement has the potential to help thousands of people affected by the genetic disorder cystic fibrosis. I want to be glad that another company found a way to produce the drug for cheaper, but people can not forget about the 20 years and billions of dollars that the original company poured into research to discover the drug. I hope there is a future where this drug will become accessible for every patient diagnosed with CF to increase life span and quality of life.