Saturday, March 28, 2015

Can genetic testing be anonymous?

23andMe Ancestry Composition - World Map
A recent article in the New York Times discusses whether or not genetic testing can be anonymous. 23andMe has made a $60 million deal with the bioresearch company Genetech that gave Genetech access to the database of their genetic information, as well as 13 deals with other partners. Genetic information is useful in predicting the effects of genetic diseases, but things like environment, stress, exercise and diet also can affect the outcome. Having a large database of genetic information causes problems with some due to the fact that they are targets of genetic identity theft and allows for invasion of privacy. The article continues on with why having such a database and giving access to it would be a bad idea: in 2013, one researcher tracked down five people that were randomly selected from a database using only DNA, their age, and the state in which they lived, and then continued on to track down a number of their relatives. This shows that it isn't difficult to invade someones privacy and surpass anonymity with just DNA. It also stated that scientists in Israel showed that the DNA from the database, even though anonymous, could be used to manipulate crime scenes and corrupt evidence. 

23andMe has stated in an earlier version of the article that finding a customer's identity with little genetic information isn't possible, but having databases such as these could still be dangerous. They claim on their website that multiple levels of encryption and security protocols protecting personal information, but we all know that anything accessible on the internet isn't always safe. I feel like it's a cool idea to be able to find out any information that your DNA can tell you, but also to just be careful where and how you get the information. 

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